Hereditary hemorrhagic telangiectasia

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Displaying 21-25 out of 25 doctors available

  1. Jonathan D. Schwartz, D.O., M.P.H.
    Areas of focus:

    Brain tumor, Pediatric brain tumor, Brain metastasis, Neurofibromatosis, Schwannomatosis, Hereditary hemorrhagic telang...iectasia, Tuberous sclerosis, Spine tumor, Brain cancer, Gorlin syndrome, Pediatric central nervous system tumor, Von Hippel-Lindau syndrome, Sturge-Weber syndrome

  2. Janalee K. Stokken, M.D.

    Janalee K. Stokken, M.D.

    1. Otolaryngologist
    1. Rochester, MN
    Areas of focus:

    Pituitary tumor surgery, Orbital decompression surgery, Dacryocystorhinostomy, Endoscopic sinus surgery, Sinus surgery,... Skull base surgery, Septoplasty, Orbital tumor removal, Pituitary tumor, CSF leak, Hereditary hemorrhagic telangiectasia, Nasal and paranasal tumors, Thyroid eye disease, Graves' disease, Nasal polyps, Chronic sinusitis, Nasal cancer

  3. Karen L. Swanson, D.O.

    Karen L. Swanson, D.O.

    1. Internist
    2. Critical Care Specialist
    3. Pulmonologist
    1. Phoenix, AZ
    Areas of focus:

    Lung volume reduction surgery, Rigid bronchoscopy, Hereditary hemorrhagic telangiectasia, Lung cancer, Pulmonary hypert...ension

  4. Lindsy N. Williams, M.D.

    Lindsy N. Williams, M.D.

    1. Neurologist
    1. Jacksonville, FL
    Areas of focus:

    Telestroke, Stroke, Arteriovenous malformation, Brain aneurysm, Transient ischemic attack, Subarachnoid hemorrhage, Cer...ebrovascular disease, Venous malformation, Carotid artery disease, Dural arteriovenous fistula, Brain AVM, Intracranial hematoma, Subdural hemorrhage, Spinal arteriovenous malformation, Cavernous malformations, Moyamoya disease, Hereditary hemorrhagic telangiectasia, Central nervous system vascular malformations, Intracranial venous malformation, Intracranial hemorrhage, Giant cell arteritis, Takayasu's arteritis, Brain hemorrhage, CADASIL, Cerebral microbleeds, Subdural hematoma, Antiphospholipid syndrome, Small vessel white matter disease, Vascular dementia, Binswanger's disease, Central nervous system arteritis, Arteritis, Cerebral amyloid angiopathy, Venous angioma, Basilar artery stenosis, Venous thrombosis, Basilar dissection, Vertebral artery blockage, Vertebral artery dissection, Vertebral artery stenosis, Vertebrobasilar insufficiency, Carotid bruit, Intracerebral hemorrhage, Amaurosis fugax, Cavernous hemangioma, Carotid dissection

  5. Christopher P. Wood, M.D.

    Christopher P. Wood, M.D.

    1. Radiologist
    1. Rochester, MN
    Areas of focus:

    Hereditary hemorrhagic telangiectasia

Research

Mayo Clinic researchers are studying how HHT affects the nose, brain, lungs, digestive tract and liver. They're also assessing the role of anti-angiogenic medicines. These medicines keep blood vessels from forming and manage serious HHT-related bleeding. They include bevacizumab (Avastin), given through a vein. They also include medicines taken by mouth such as pazopanib (Votrient), pomalidomide (Pomalyst) and tacrolimus (Prograf, Protopic, others).

Mayo Clinic has been recruiting people for the Brain Vascular Malformations Consortium (BVMC) study. Mayo Clinic also is recruiting for a biorepository of patient blood samples that can help researchers find better diagnostic, prognostic and treatment options for this rare disease.

Publications

See a list of publications about hereditary hemorrhagic telangiectasia by Mayo Clinic doctors on PubMed, a service of the National Library of Medicine.

By Mayo Clinic Staff

Hereditary hemorrhagic telangiectasia care at Mayo Clinic

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Diagnosis & treatmentCare at Mayo Clinic
Feb. 07, 2025
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Hereditary hemorrhagic telangiectasia

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