Hereditary hemorrhagic telangiectasia

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Displaying 11-20 out of 25 doctors available

  1. C. Christopher Hook, M.D.

    C. Christopher Hook, M.D.

    1. Internist
    2. Hematologist
    1. Rochester, MN
    Areas of focus:

    Anticoagulant therapy, Hereditary hemorrhagic telangiectasia, Immune thrombocytopenia, von Willebrand disease, Myelopro...liferative disorders, Hemophilia, Bleeding disorder, Benign hematologic condition, Thrombophilia, Acute leukemia

  2. Josephine F. Huang, M.D.

    Josephine F. Huang, M.D.

    1. Neurologist
    1. Jacksonville, FL
    Areas of focus:

    Stroke prevention, Telestroke, Stroke, Arteriovenous malformation, Brain aneurysm, Transient ischemic attack, Subarachn...oid hemorrhage, Venous malformation, Carotid artery disease, Dural arteriovenous fistula, Brain AVM, Intracranial hematoma, Subdural hemorrhage, Spinal arteriovenous malformation, Cavernous malformations, Moyamoya disease, Hereditary hemorrhagic telangiectasia, Central nervous system vascular malformations, Intracranial venous malformation, Intracranial hemorrhage, Giant cell arteritis, Takayasu's arteritis, Brain hemorrhage, CADASIL, Cerebral microbleeds, Subdural hematoma, Antiphospholipid syndrome, Small vessel white matter disease, Vascular dementia, Binswanger's disease, Central nervous system arteritis, Arteritis, Cerebral amyloid angiopathy, Venous angioma, Basilar artery stenosis, Venous thrombosis, Basilar dissection, Vertebral artery blockage, Vertebral artery dissection, Vertebral artery stenosis, Vertebrobasilar insufficiency, Carotid bruit, Intracerebral hemorrhage, Amaurosis fugax, Vascular malformation, Ischemic stroke, Carotid dissection

  3. Vivek N. Iyer, M.D., M.P.H.

    Vivek N. Iyer, M.D., M.P.H.

    1. Internist
    2. Critical Care Specialist
    3. Pulmonologist
    1. Rochester, MN
    Areas of focus:

    Central venous catheterization, Bronchoscopy, Pulmonary function test, Chest tube placement, Laryngoscopy, Endotracheal... intubation, Hereditary hemorrhagic telangiectasia, Sarcoidosis, Interstitial lung disease, Asthma, Chronic cough

  4. Patrick S. Kamath, M.D.

    Patrick S. Kamath, M.D.

    1. Transplant Hepatologist
    1. Rochester, MN
    Areas of focus:

    Pre-liver transplant evaluation, Post-liver transplant care, Hereditary hemorrhagic telangiectasia, Encephalitis, Cirrh...osis, Alcoholic liver disease, Portal hypertension, Gastrointestinal bleeding, Polycystic liver disease, Liver abscess, Fontan-associated liver disease, Ascites

  5. Giuseppe Lanzino, M.D.

    Giuseppe Lanzino, M.D.

    1. Neurosurgeon
    1. Rochester, MN
    Areas of focus:

    Brain tumor surgery, Brain aneurysm surgery, Carotid angioplasty and stenting, Arteriovenous malformation, Carotid arte...ry disease, Dural arteriovenous fistula, Spinal arteriovenous malformation, Cavernous malformations, Moyamoya disease, Hereditary hemorrhagic telangiectasia, Central nervous system vascular malformations

  6. Michael D. Leise, M.D.

    Michael D. Leise, M.D.

    1. Transplant Hepatologist
    1. Rochester, MN
    Areas of focus:

    Colonoscopy, Upper endoscopy, Hereditary hemorrhagic telangiectasia, Nonalcoholic fatty liver disease, Cirrhosis, Liver... problems, Esophageal varices, Hepatitis C, Primary sclerosing cholangitis, Hepatitis B, Cholangiocarcinoma, Portal hypertension, Hemochromatosis, Alcoholic hepatitis, Autoimmune hepatitis, Hepatocellular carcinoma, Wilson's disease, Hepatopulmonary syndrome, Primary biliary cholangitis, Portopulmonary hypertension, Hepatic encephalopathy

  7. Sanjay Misra, M.D.

    Sanjay Misra, M.D.

    1. Radiologist
    1. Rochester, MN
    Areas of focus:

    Peripheral artery disease, Hereditary hemorrhagic telangiectasia, Renal artery stenosis, Hemodialysis vascular access d...ysfunction, Inferior vena cava stenosis, Iliac vein stenosis, Subclavian artery stenosis

  8. John E. Moss, M.D.

    John E. Moss, M.D.

    1. Internist
    2. Critical Care Specialist
    3. Pulmonologist
    1. Jacksonville, FL
    Areas of focus:

    Bronchoscopy, Airway management, Right heart catheterization with exercise, Percutaneous tracheostomy, Hereditary hemor...rhagic telangiectasia, ARDS, Pulmonary hypertension, Pulmonary embolism, Respiratory failure

  9. Pavel N. Pichurin, M.D.

    Pavel N. Pichurin, M.D.

    1. Medical Geneticist
    1. Rochester, MN
    Areas of focus:

    Hereditary hemorrhagic telangiectasia, Metabolic disorders, Von Hippel-Lindau syndrome

  10. Rajiv K. K. Pruthi, M.B.B.S.

    Rajiv K. K. Pruthi, M.B.B.S.

    1. Hematologist
    1. Rochester, MN
    Areas of focus:

    Hereditary hemorrhagic telangiectasia, von Willebrand disease, Hemophilia, Bleeding disorder, Thrombophilia

Research

Mayo Clinic researchers are studying how HHT affects the nose, brain, lungs, digestive tract and liver. They're also assessing the role of anti-angiogenic medicines. These medicines keep blood vessels from forming and manage serious HHT-related bleeding. They include bevacizumab (Avastin), given through a vein. They also include medicines taken by mouth such as pazopanib (Votrient), pomalidomide (Pomalyst) and tacrolimus (Prograf, Protopic, others).

Mayo Clinic has been recruiting people for the Brain Vascular Malformations Consortium (BVMC) study. Mayo Clinic also is recruiting for a biorepository of patient blood samples that can help researchers find better diagnostic, prognostic and treatment options for this rare disease.

Publications

See a list of publications about hereditary hemorrhagic telangiectasia by Mayo Clinic doctors on PubMed, a service of the National Library of Medicine.

By Mayo Clinic Staff

Hereditary hemorrhagic telangiectasia care at Mayo Clinic

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Diagnosis & treatmentCare at Mayo Clinic
Feb. 07, 2025
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Joseph Sirven, M.D., Professor of Neurology, Mayo Clinic: Mayo's mission is about the patient. The patient comes first. So the mission and research here is to advance how we can best help the patient, how to make sure the patient comes first in care. So in many ways, it's a cycle. It can start with as simple as an idea worked on in a laboratory, brought to the patient bedside, and if everything goes right — and let's say it's helpful or beneficial — then brought on as a standard approach. And I think that is one of the unique characteristics of Mayo's approach to research — that patient-centeredness — that really helps to put it in its own spotlight.