Hereditary hemorrhagic telangiectasia

HHT care at Mayo Clinic

Mayo Clinic is a hereditary hemorrhagic telangiectasia (HHT) Center of Excellence. This means that CureHHT has designated Mayo Clinic as a center that provides state-of-the-art care and has experts in diagnosing and treating all aspects of this disorder in children and adults. Mayo Clinic provides whole-person care that meets the needs of people and families with HHT.

Your Mayo Clinic care team

At Mayo Clinic, specialists from many departments work together to diagnose and treat people with hereditary hemorrhagic telangiectasia (HHT). These include specialists in pulmonary medicine; clinical genomics; pediatric pulmonary; cardiovascular disease; neurology; neurosurgery; Otolaryngology (ENT)/Head and Neck Surgery; gastroenterology and hepatology; and radiology.

Advanced diagnosis and treatment

Mayo Clinic offers in-house comprehensive genetic testing for HHT and similar vascular malformation syndromes. This test (LAB 11256) tests for common and rare genetic mutations associated with HHT and similar vascular disorders. Mayo Clinic's Center for Individualized Medicine offers personalized consultations for rare or undiagnosed conditions. Mayo pharmacists compound a special rose geranium in sesame oil nose spray for nosebleeds of people with HHT.

Expertise and rankings

HHT is a rare disease that can be difficult to diagnose. People with this uncommon disorder sometimes don't receive a correct diagnosis for more than a decade.

Mayo Clinic is a hereditary hemorrhagic telangiectasia (HHT) Center of Excellence. It's the only HHT Center of Excellence in Minnesota and one of the few in the Upper Midwest. This means that Mayo Clinic has been designated by Cure HHT as having expertise in diagnosing and treating all aspects of this disorder in both children and adults.

Mayo Clinic specialists see hundreds of people with HHT and provides state-of-the-art care for HHT.

Locations, travel and lodging

Mayo Clinic has major campuses in Phoenix and Scottsdale, Arizona; Jacksonville, Florida; and Rochester, Minnesota. The Mayo Clinic Health System has dozens of locations in several states.

For more information on visiting Mayo Clinic, choose your location below:

Costs and insurance

Mayo Clinic works with hundreds of insurance companies and is an in-network provider for millions of people.

In most cases, Mayo Clinic doesn't require a physician referral. Some insurers require referrals or may have additional requirements for certain medical care. All appointments are prioritized on the basis of medical need.

Learn more about appointments at Mayo Clinic.

Please contact your insurance company to verify medical coverage and to obtain any needed authorization prior to your visit. Often, your insurer's customer service number is printed on the back of your insurance card.

Living with hereditary hemorrhagic telangiectasia?

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