上皮样肉瘤

诊断

上皮样肉瘤可能难以诊断。它的外观与一些较为常见的问题类似。医务人员往往会先考虑那些更常见的问题。例如，不能愈合的皮肤溃疡可能被误认为皮肤感染。

用于诊断上皮样肉瘤的检查和医疗程序包括：

• 影像学检查。影像学检查会拍摄身体照片，以显示上皮样肉瘤的位置和大小。检查可能包括 X 线检查、MRI、CT 和正电子发射断层成像（也称为 PET 扫描）。
• 获取组织以进行检测。活检是一种取出组织样本并进行实验室检查的医疗程序。可使用针头穿过皮肤并进入癌症部位以取出组织。有时需要手术采集组织样本。该样本在实验室进行检测，以确定是否为癌症。其他特殊检查可提供更多有关癌细胞的信息。医疗团队利用这些信息制定治疗方案。

治疗

手术是上皮样肉瘤最常见的治疗方法。除手术外，有时还可以使用其他治疗方法。治疗选项可能包括：

• 外科手术。手术需要切除癌细胞及其周围的一些健康组织。取一些健康组织有助于确保所有癌细胞都被清除。切除所有癌细胞会降低癌症复发的风险。
• 放射疗法。放射疗法利用强大的能量束来杀死癌细胞。放射疗法有时用于在术前缩小肿瘤，以增加在手术期间切除所有癌细胞的机会，还可用于在术后杀死任何可能残留的癌细胞。
• 靶向治疗。靶向治疗使用的药物可攻击癌细胞中帮助它们生长的特定化学物质。通过阻断这些化学物质，靶向治疗可杀死癌细胞。如果您不能做手术或者其他治疗方法无效，那么可以选择靶向治疗。
• 化疗。化疗使用强效药物杀死癌细胞。对于扩散到身体其他部位的上皮样肉瘤，可以选择化疗。如果不能进行手术，也可以选择化疗。
• 临床试验。临床试验是对新疗法进行的研究。这些研究让患者有机会尝试最新的治疗方案。可能存在未知的副作用。您可以咨询医疗团队您是否有资格参加临床试验。

准备您的预约

Make an appointment with a doctor or other healthcare professional if you have any symptoms that worry you. If your health professional thinks you may have epithelioid sarcoma, that person may refer you to a specialist. Often, this is a doctor who specializes in cancer, called an oncologist.

Appointments can be short and being prepared can help. Here's some information that may help you get ready for your visit.

What you can do

When you make the appointment, ask if there's anything you need to do in advance, such as fasting before having a specific test. Make a list of:

• Your symptoms, including any that seem unrelated to the reason for the appointment.
• Key personal information, including recent life changes and family medical history.
• All medications, vitamins or other supplements you take, including the doses.
• Questions to ask your healthcare professional.

For epithelioid sarcoma, some basic questions to ask your healthcare professional include:

• Do I have cancer?
• Do I need more tests?
• What are my treatment options?
• What are the potential risks for these treatment options?
• Do any of the treatments cure the cancer?
• Can I have a copy of the pathology report?
• How much time can I take to consider the treatment options?
• Are there brochures or other printed materials that I can take with me? What websites do you recommend?
• What would happen if I choose not to have treatment?

Don't hesitate to ask other questions.

What to expect from your doctor

Your healthcare professional is likely to ask you several questions, such as:

• When did your symptoms begin?
• Have your symptoms been continuous or occasional?
• How bad are your symptoms?
• What, if anything, seems to improve your symptoms?
• What, if anything, appears to worsen your symptoms?

Living with 上皮样肉瘤?

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