Hereditary hemorrhagic telangiectasia

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Displaying 1-3 out of 3 doctors available

Last Name Initial: S

  1. Jonathan D. Schwartz, D.O., M.P.H.
    Areas of focus:

    Brain tumor, Pediatric brain tumor, Brain metastasis, Neurofibromatosis, Schwannomatosis, Hereditary hemorrhagic telang...iectasia, Tuberous sclerosis, Spine tumor, Brain cancer, Gorlin syndrome, Pediatric central nervous system tumor, Von Hippel-Lindau syndrome, Sturge-Weber syndrome

  2. Janalee K. Stokken, M.D.

    Janalee K. Stokken, M.D.

    1. Otolaryngologist
    1. Rochester, MN
    Areas of focus:

    Pituitary tumor surgery, Orbital decompression surgery, Dacryocystorhinostomy, Endoscopic sinus surgery, Sinus surgery,... Skull base surgery, Septoplasty, Orbital tumor removal, Pituitary tumor, CSF leak, Hereditary hemorrhagic telangiectasia, Nasal and paranasal tumors, Thyroid eye disease, Graves' disease, Nasal polyps, Chronic sinusitis, Nasal cancer

  3. Karen L. Swanson, D.O.

    Karen L. Swanson, D.O.

    1. Internist
    2. Critical Care Specialist
    3. Pulmonologist
    1. Phoenix, AZ
    Areas of focus:

    Lung volume reduction surgery, Rigid bronchoscopy, Hereditary hemorrhagic telangiectasia, Lung cancer, Pulmonary hypert...ension

Research

Mayo Clinic researchers are studying how HHT affects the nose, brain, lungs, digestive tract and liver. They're also assessing the role of anti-angiogenic medicines. These medicines keep blood vessels from forming and manage serious HHT-related bleeding. They include bevacizumab (Avastin), given through a vein. They also include medicines taken by mouth such as pazopanib (Votrient), pomalidomide (Pomalyst) and tacrolimus (Prograf, Protopic, others).

Mayo Clinic has been recruiting people for the Brain Vascular Malformations Consortium (BVMC) study. Mayo Clinic also is recruiting for a biorepository of patient blood samples that can help researchers find better diagnostic, prognostic and treatment options for this rare disease.

Publications

See a list of publications about hereditary hemorrhagic telangiectasia by Mayo Clinic doctors on PubMed, a service of the National Library of Medicine.

By Mayo Clinic Staff

Hereditary hemorrhagic telangiectasia care at Mayo Clinic

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Diagnosis & treatmentCare at Mayo Clinic
Feb. 07, 2025
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Hereditary hemorrhagic telangiectasia

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