Hereditary hemorrhagic telangiectasia

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Departments and specialties

Mayo Clinic has one of the largest and most experienced practices in the United States, with campuses in Arizona, Florida and Minnesota. Staff skilled in dozens of specialties work together to ensure quality care and successful recovery.

Departments that treat this condition

Areas that research this condition

Research

Mayo Clinic researchers are studying how HHT affects the nose, brain, lungs, digestive tract and liver. They're also assessing the role of anti-angiogenic medicines. These medicines keep blood vessels from forming and manage serious HHT-related bleeding. They include bevacizumab (Avastin), given through a vein. They also include medicines taken by mouth such as pazopanib (Votrient), pomalidomide (Pomalyst) and tacrolimus (Prograf, Protopic, others).

Mayo Clinic has been recruiting people for the Brain Vascular Malformations Consortium (BVMC) study. Mayo Clinic also is recruiting for a biorepository of patient blood samples that can help researchers find better diagnostic, prognostic and treatment options for this rare disease.

Publications

See a list of publications about hereditary hemorrhagic telangiectasia by Mayo Clinic doctors on PubMed, a service of the National Library of Medicine.

By Mayo Clinic Staff

Hereditary hemorrhagic telangiectasia care at Mayo Clinic

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Diagnosis & treatmentCare at Mayo Clinic
Feb. 07, 2025
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Hereditary hemorrhagic telangiectasia

Research: It's all about patients

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Joseph Sirven, M.D., Professor of Neurology, Mayo Clinic: Mayo's mission is about the patient. The patient comes first. So the mission and research here is to advance how we can best help the patient, how to make sure the patient comes first in care. So in many ways, it's a cycle. It can start with as simple as an idea worked on in a laboratory, brought to the patient bedside, and if everything goes right — and let's say it's helpful or beneficial — then brought on as a standard approach. And I think that is one of the unique characteristics of Mayo's approach to research — that patient-centeredness — that really helps to put it in its own spotlight.