Print By Mayo Clinic Staff Request an appointment Diagnosis & treatment April 05, 2023 Print Living with porphyria? Connect with others like you for support and answers to your questions in the Blood Cancers & Disorders support group on Mayo Clinic Connect, a patient community. Blood Cancers & Disorders Discussions Anyone want to talk about Myelofibrosis? 163 Replies Sat, Apr 05, 2025 chevron-right What are most common side effects when starting HU (Hydroxyurea)? 146 Replies Sat, Apr 05, 2025 chevron-right My Bone Marrow Transplant (BMT/SCT) story: Will you share yours? 661 Replies Sat, Apr 05, 2025 chevron-right See more discussions Related Associated Procedures Complete blood count (CBC) Urinalysis Products & Services A Book: Mayo Clinic Family Health Book Newsletter: Mayo Clinic Health Letter — Digital Edition Show more products and services from Mayo Clinic PorphyriaSymptoms&causesDiagnosis&treatment Research: It's all about patients Show transcript for video Research: It's all about patients [MUSIC PLAYING] Joseph Sirven, M.D., Professor of Neurology, Mayo Clinic: Mayo's mission is about the patient. The patient comes first. So the mission and research here is to advance how we can best help the patient, how to make sure the patient comes first in care. So in many ways, it's a cycle. It can start with as simple as an idea worked on in a laboratory, brought to the patient bedside, and if everything goes right — and let's say it's helpful or beneficial — then brought on as a standard approach. And I think that is one of the unique characteristics of Mayo's approach to research — that patient-centeredness — that really helps to put it in its own spotlight. CON-20257485 Patient Care & Health Information Diseases & Conditions Porphyria