Multiple endocrine neoplasia, type 1 (MEN 1) care at Mayo Clinic
Your Mayo Clinic care team
Mayo Clinic specialists work as a team to listen, counsel and treat people who have multiple endocrine neoplasia, type 1 (MEN 1). Depending on your specific needs and related conditions, the team may include experts in endocrinology, endocrine surgery, gastroenterology, neurosurgery, oncology, interventional radiology, radiation oncology, chest (thoracic) surgery, liver (hepatobiliary) surgery, medical genetics and other areas if needed.
Advanced diagnosis methods
Mayo Clinic offers a variety of advanced diagnostic tests for MEN-1. Imaging tests may include magnetic resonance imaging (MRI), computerized tomography (CT) scan, positron emission tomography (PET) scan, nuclear medicine scan, endoscopic ultrasound of the pancreas and other scans.
Mayo Clinic also offers an imaging test, Ga-DOTATATE PET scanning, which isn't widely available. Ga-DOTATATE PET scanning is combined with either MRI or CT scans. This type of test is very sensitive for endocrine system tumors.
Treatment expertise
Mayo Clinic experts have a wealth of expertise in the latest treatments for all tumors associated with MEN 1, including tumors that are in one area (localized) or those that have spread (metastasized).
Mayo Clinic healthcare professionals work with you to review your treatment options and choose the treatment that best suits the tumor type and your needs.
Genetic specialists
Mayo Clinic experts encourage people who have a genetic change that causes MEN 1 to have periodic tests to look for tumors and other related medical problems. Experts recommend that family members at risk of MEN 1 get genetic testing or start getting clinical screening in childhood or the early teen years because problems, such as hyperparathyroidism, can develop before age 20. Screening can begin as early as 5 years old.
At Mayo Clinic, genetic specialists from the Department of Clinical Genomics help you review the pros and cons of genetic testing. At a meeting with a genetic specialist, you can learn:
- How and where the test is performed.
- How likely it might be that the test will show that you have the MEN1 gene change.
- How a positive test result would influence current medical management.
- How a positive test result would provide options for family members who may be at risk.
- Which family members might be at risk and need more testing.
Expertise and rankings
Mayo Clinic specialists are respected for the excellent care they provide for people with MEN 1. At Mayo Clinic, you can expect:
- Personalized care. Mayo Clinic specialists work as a team to make sure all of your individual needs are addressed in your care plan. Other experts are included as needed.
- Experience you can trust. MEN 1 is a rare condition, affecting about 1 in 30,000 people. Mayo Clinic specialists treat about 175 people with MEN 1 each year. This experience means that your healthcare professionals are equipped with the knowledge and resources to provide you with the best care.
Mayo Clinic in Rochester, Minnesota, ranks No. 1 for diabetes and endocrinology in the U.S. News & World Report Best Hospitals rankings. Mayo Clinic in Phoenix/Scottsdale, Arizona, and Mayo Clinic in Jacksonville, Florida, are ranked among the Best Hospitals for diabetes and endocrinology by U.S. News & World Report.
Mayo Clinic Comprehensive Cancer Center meets the strict standards for a U.S. National Cancer Institute comprehensive cancer center. These standards recognize scientific excellence and a multispecialty approach focused on cancer prevention, diagnosis and treatment.
Locations, travel and lodging
Mayo Clinic has major campuses in Phoenix and Scottsdale, Arizona; Jacksonville, Florida; and Rochester, Minnesota. The Mayo Clinic Health System has dozens of locations in several states.
For more information on visiting Mayo Clinic, choose your location below:
Costs and insurance
Mayo Clinic works with hundreds of insurance companies and is an in-network provider for millions of people.
In most cases, Mayo Clinic doesn't require a physician referral. Some insurers require referrals or may have additional requirements for certain medical care. All appointments are prioritized on the basis of medical need.
Learn more about appointments at Mayo Clinic.
Please contact your insurance company to verify medical coverage and to obtain any needed authorization prior to your visit. Often, your insurer's customer service number is printed on the back of your insurance card.
Oct. 04, 2024