遗传性出血性毛细血管扩张症

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妙佑医疗国际是美国规模最大、经验最丰富的医疗机构之一，在亚利桑那州、佛罗里达州和明尼苏达州都有院区。医务人员掌握数几十种专业技能，齐心协力，确保高品质治疗与成功康复。

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治疗此病症的医生

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  1. C. Christopher Hook, M.D.

    C. Christopher Hook, M.D.

    1. Internist
    2. Hematologist
    1. Rochester, MN
    擅长领域：

    Anticoagulant therapy, Hereditary hemorrhagic telangiectasia, Immune thrombocytopenia, von Willebrand disease, Myelopro...liferative disorders, Hemophilia, Bleeding disorder, Benign hematologic condition, Thrombophilia, Acute leukemia

  2. Josephine F. Huang, M.D.

    Josephine F. Huang, M.D.

    1. Neurologist
    1. Jacksonville, FL
    擅长领域：

    Stroke prevention, Telestroke, Stroke, Arteriovenous malformation, Brain aneurysm, Transient ischemic attack, Subarachn...oid hemorrhage, Venous malformation, Carotid artery disease, Dural arteriovenous fistula, Brain AVM, Intracranial hematoma, Subdural hemorrhage, Spinal arteriovenous malformation, Cavernous malformations, Moyamoya disease, Hereditary hemorrhagic telangiectasia, Central nervous system vascular malformations, Intracranial venous malformation, Intracranial hemorrhage, Giant cell arteritis, Takayasu's arteritis, Brain hemorrhage, CADASIL, Cerebral microbleeds, Subdural hematoma, Antiphospholipid syndrome, Small vessel white matter disease, Vascular dementia, Binswanger's disease, Central nervous system arteritis, Arteritis, Cerebral amyloid angiopathy, Venous angioma, Basilar artery stenosis, Venous thrombosis, Basilar dissection, Vertebral artery blockage, Vertebral artery dissection, Vertebral artery stenosis, Vertebrobasilar insufficiency, Carotid bruit, Intracerebral hemorrhage, Amaurosis fugax, Vascular malformation, Ischemic stroke, Carotid dissection

  3. Vivek N. Iyer, M.D., M.P.H.

    Vivek N. Iyer, M.D., M.P.H.

    1. Internist
    2. Critical Care Specialist
    3. Pulmonologist
    1. Rochester, MN
    擅长领域：

    Central venous catheterization, Bronchoscopy, Pulmonary function test, Chest tube placement, Laryngoscopy, Endotracheal... intubation, Hereditary hemorrhagic telangiectasia, Sarcoidosis, Interstitial lung disease, Asthma, Chronic cough

  4. Patrick S. Kamath, M.D.

    Patrick S. Kamath, M.D.

    1. Transplant Hepatologist
    1. Rochester, MN
    擅长领域：

    Pre-liver transplant evaluation, Post-liver transplant care, Hereditary hemorrhagic telangiectasia, Encephalopathy, Cir...rhosis, Alcoholic liver disease, Portal hypertension, Gastrointestinal bleeding, Polycystic liver disease, Liver abscess, Fontan-associated liver disease, Ascites

  5. Giuseppe Lanzino, M.D.

    Giuseppe Lanzino, M.D.

    1. Neurosurgeon
    1. Rochester, MN
    擅长领域：

    Brain tumor surgery, Brain aneurysm surgery, Carotid angioplasty and stenting, Arteriovenous malformation, Carotid arte...ry disease, Dural arteriovenous fistula, Spinal arteriovenous malformation, Cavernous malformations, Moyamoya disease, Hereditary hemorrhagic telangiectasia, Central nervous system vascular malformations

  6. Michael D. Leise, M.D.

    Michael D. Leise, M.D.

    1. Transplant Hepatologist
    1. Rochester, MN
    擅长领域：

    Colonoscopy, Upper endoscopy, Hereditary hemorrhagic telangiectasia, Nonalcoholic fatty liver disease, Cirrhosis, Liver... problems, Esophageal varices, Hepatitis C, Primary sclerosing cholangitis, Hepatitis B, Cholangiocarcinoma, Portal hypertension, Hemochromatosis, Alcoholic hepatitis, Autoimmune hepatitis, Hepatocellular carcinoma, Wilson's disease, Hepatopulmonary syndrome, Primary biliary cholangitis, Portopulmonary hypertension, Hepatic encephalopathy

  7. Sanjay Misra, M.D.

    Sanjay Misra, M.D.

    1. Radiologist
    1. Rochester, MN
    擅长领域：

    Peripheral artery disease, Hereditary hemorrhagic telangiectasia, Renal artery stenosis, Hemodialysis vascular access d...ysfunction, Inferior vena cava stenosis, Iliac vein stenosis, Subclavian artery stenosis

  8. John E. Moss, M.D.

    John E. Moss, M.D.

    1. Internist
    2. Critical Care Specialist
    3. Pulmonologist
    1. Jacksonville, FL
    擅长领域：

    Bronchoscopy, Airway management, Right heart catheterization with exercise, Percutaneous tracheostomy, Hereditary hemor...rhagic telangiectasia, ARDS, Pulmonary hypertension, Pulmonary embolism, Respiratory failure

  9. Pavel N. Pichurin, M.D.

    Pavel N. Pichurin, M.D.

    1. Medical Geneticist
    1. Rochester, MN
    擅长领域：

    Hereditary hemorrhagic telangiectasia, Metabolic disorders, Von Hippel-Lindau syndrome

  10. Rajiv K. K. Pruthi, M.B.B.S.

    Rajiv K. K. Pruthi, M.B.B.S.

    1. Hematologist
    1. Rochester, MN
    擅长领域：

    Hereditary hemorrhagic telangiectasia, von Willebrand disease, Hemophilia, Bleeding disorder, Thrombophilia

研究

妙佑医疗国际的研究人员正在研究 HHT 如何影响大脑、肺、消化道和肝脏。他们还评估了帕唑帕尼 (Votrient) 和泊马度胺 (Pomalyst) 等口服药物在治疗与 HHT 相关的严重出血中的作用。

文献

请参阅美国国家医学图书馆检索服务系统 PubMed 所收录的妙佑医疗国际医生发表的关于遗传性出血性毛细血管扩张症的文献目录。

来自妙佑医疗国际员工

在 Mayo Clinic 治疗

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诊断与治疗在 Mayo Clinic 治疗
Dec. 28, 2022
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遗传性出血性毛细血管扩张症

研究完全以患者为中心。

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妙佑医疗国际神经学教授 Joseph Sirven 医学博士：妙佑医疗的使命以患者为中心。患者第一。我们的使命和研究是为了更好地帮助患者，提供以患者为中心的护理。在很多方面，这是一个循环。这个过程可能很简单，就是先在实验室里出现一个想法，然后带到病床旁加以实施，如果一切顺利，对患者有所助益， 就形成标准。我认为这就是妙佑医疗国际研究方法的一个独特之处，而这种以患者为中心的方式，也是妙佑医疗在众多医疗机构中脱颖而出的原因之一。