Neurofibromatosis type 1

Neurofibromatosis type 1 care at Mayo Clinic

Your Mayo Clinic care team

Mayo Clinic's world-renowned Neurofibromatosis Clinic provides coordinated care for people with this complex condition. Geneticists, adult and pediatric neurologists, neuro-oncologists, radiologists, and neurosurgeons work together to provide exactly the care you need. Genetic counselors, ophthalmologists, orthopedic surgeons, dermatologists, pain medicine experts, and ear, nose and throat specialists also are part of the treatment team.

Mayo Clinic in Rochester, Minnesota, also offers the family-friendly Children's Center for children with neurofibromatosis type 1.

Having all of this subspecialized expertise in a single place, focused on you, means that you're not just getting one opinion. Care is discussed among the team, appointments are scheduled in coordination and highly specialized neurofibromatosis experts are all working together to determine what's best for you.

What might take months to accomplish elsewhere can typically be done in a matter of only days at Mayo Clinic.

Advanced diagnosis and treatment

Mayo Clinic doctors have access to the latest imaging and diagnostic tools, and there's a long history of Mayo Clinic scientists developing cutting-edge technologies for patient care. Mayo Clinic specialists use the full array of genetic, imaging, vision and hearing tests to diagnose neurofibromatosis type 1 (NF1).

Mayo Clinic specialists also have experience with treatment for serious NF1, including surgery.

The Neurofibromatosis Clinic also has genetic counselors who can help you make decisions that are appropriate for you and your family. Counselors can help you consider risks, family goals, and ethical and religious standards when making treatment decisions.

Expertise and rankings

Mayo Clinic experts treat about 600 people who have neurofibromatosis type 1 each year.

Learn more about Mayo Clinic's neurology and neurosurgery departments' expertise and rankings.

Mayo Clinic in Rochester, Minnesota, Mayo Clinic in Jacksonville, Florida, and Mayo Clinic in Phoenix/Scottsdale, Arizona., rank among the Best Hospitals for neurology and neurosurgery and for cancer in the U.S. News & World Report rankings. Mayo Clinic Children's Center in Rochester is ranked the No. 1 hospital in Minnesota, and the five-state region of Iowa, Minnesota, North Dakota, South Dakota and Wisconsin, according to U.S. News & World Report's 2024–2025 "Best Children's Hospitals" rankings. With the emphasis on collaborative care, specialists interact very closely with their colleagues across all sites.

Mayo Clinic Comprehensive Cancer Center meets the strict standards for a U.S. National Cancer Institute comprehensive cancer center. These standards recognize scientific excellence and a multispecialty approach focused on cancer prevention, diagnosis and treatment.

Locations, travel and lodging

Mayo Clinic has major campuses in Phoenix and Scottsdale, Arizona; Jacksonville, Florida; and Rochester, Minnesota. The Mayo Clinic Health System has dozens of locations in several states.

For more information on visiting Mayo Clinic, choose your location below:

Costs and insurance

Mayo Clinic works with hundreds of insurance companies and is an in-network provider for millions of people.

In most cases, Mayo Clinic doesn't require a physician referral. Some insurers require referrals or may have additional requirements for certain medical care. All appointments are prioritized on the basis of medical need.

Learn more about appointments at Mayo Clinic.

Please contact your insurance company to verify medical coverage and to obtain any needed authorization prior to your visit. Often, your insurer's customer service number is printed on the back of your insurance card.